Craniosynostosis can affect one or more of the joints in your baby's skull. In some cases, craniosynostosis is associated with an underlying brain abnormality that prevents the brain from growing properly. Approximately 1 in every 2000 babies is born with some form of Craniosynostosis.
More specifically, Grant has Sagittal Craniosynostosis, also called Scaphocephaly. The literal meaning of the Greek derived word ‘scaphocephaly’ is boathead. Premature sagittal suture closure restricts growth in a perpendicular plane, thus his head will not grow sideways and remain narrow. Compensatory growth occurs forward at the coronal suture and backward at the lambdoid suture giving respectively a prominent forehead, called frontal bossing, and a prominent back portion of the head, called coning. When viewed from sideways the resulting shape of the head looks a bit like a boat.
You can see the frontal bossing (which just recently made an appearance) when you look at Grant's profile. Dr. Tomita told us that even though he looks cute (and I tend to agree wholeheartedly!) it's obviously a concern.